Showing posts with label IEP. Show all posts
Showing posts with label IEP. Show all posts
Thursday, April 24, 2014
Let's Fix This- IEP Edition
Wow! That last post was a doozie! It seems to have been well received so I think I will continue to share some more IEP insights. I come at this from a unique perspective. I am a mama of typical children as well as a mama of a special needs child. I am an educator and I am a parent. I see the table from a lot of different perspectives and I try to be fair. I will never advocate for the impossible. You won't see me push for dolphin therapy for Isaac. I know that no one goes into education for the exorbitant salaries or the world wide fame and glory (I giggle just writing that sentence). We all start our journeys to the IEP table because we have loved a child.
So what the heck happened?
How did this group of people who have dedicated their lives to the service and love of children and knowledge come to sit around a table glaring at each other as adversaries instead of as team mates working together for the benefit of the child.
How did we lose perspective?
We lost sight of each other. The emotion that pervades the atmosphere around the sterile conference room descended like a fog and clouded our vision. We as parents lost sight of you the educator who are buried under paperwork and deadlines and budgets. You are no longer Mrs., Miss or Mr. You are no longer teacher, administrator, therapist or psychologist. You are that entity that is denying our child what we believe will help him. Our parental eyes are clouded by the instinctual protection of our young. Instinct erases reason and elicits knee jerk reactions. There is a moment when every parent believes that you as educators have the ability to make our child better. We want a miracle and we forget that you are human servants just like us.
I have seen educators lose vision around the IEP table as well. The professionals around the table are proud of the work that they have done for our child. As the discussion progresses, I have seen educators become threatened and defensive. The professionals lose sight of their student as this person's child. Educators have dedicated years of their lives and mounds of money to their pursuit of knowledge as to how best to teach children. As I have questioned educational practices as relates to my son, I have seen educators flare up in defense of their qualifications, professionalism, and personhood. How dare I as a parent question established practice? How dare I question them?
It does not take an expert in relational counseling to know that in those moments of anger, defensiveness and instinct, the child who should be at the center of the discussion is forgotten.
How do we fix it?
-Let's all remember to be grown ups. Our child is counting on our ability to collectively move past first grade squabbles and work something out to their benefit. The best bit of advise I was ever given regarding IEPs was to litter the IEP table with adorable pictures of my son and heavy helpings of chocolate. It may sound silly, but we need to remember that the meeting is about a child and we should keep it sweet.
-We need to concentrate more on the relationship and less on one meeting. My plea to administrators is to work on building a relationship with the families of the special needs students they serve. Remember that our children cannot communicate much if any of what is going on at school. If at all possible, let us meet the teacher before our child's first day of school. Schedule an open house for the parents of the special needs students well before Labor Day. Take a lesson from kindergarten. Our children may be older but are in many ways as dependent and we as parents are just as protective. The administration, therapists, staff to include nurse, psychologist, guidance counselor and other professionals who will interact with our child should be present. Welcome the parents and their children at the open house. Have food! Display your best artwork! Offer resources for them to use at home. Be glad they are there and willing to participate in the education of their child. These parents are not hurdles in your endeavors to educate but rather are resources to be received with gratitude. They are the experts in the children you will serve and if treated with respect and camaraderie will be your greatest assets.
-Parents, remember your child's teacher and aids throughout the year. Remember the administrators and staff. Look for the good and compliment when you see good things. Schedule those compliments if necessary! Put it on your calendar once a week to share a compliment - an honest one- with your child's educational team. I have never seen anyone go into education to advance their own grandeur. They sincerely want to help your child accomplish and grow. Encourage that. Encourage them. Become part of the school environment and culture to better foster the relationship that will help your child achieve his potential.
-Administrators, special needs students are essential and should never be pushed away as an afterthought. The pressure to preform under the scrutiny of tests and standards is mind blowing. It is easy to forget that hallway that pretty well runs itself anyway. Taking the extra effort to include your special needs students into the day to day activities of the school will breathe humanity into your entire student population. Your school will come to understand that as people we all have special needs. You will facilitate an educational community who looks to help and care for those around them and will themselves achieve greater goals. Inclusion of the entire student population will establish you as an advocate of children. You will be regarded as someone who understands and respects the value and potential of all children. By opening your door, your mind and your heart, you will build open relationships and so avoid the catastrophes of IEP meetings gone horribly wrong.
-Everybody, Breathe. Relationships take time. Give each other grace and forgive our collective human screw ups. Ask forgiveness when warranted. Assure each other of your devotion to the child and to the process. Respect. Love. Remember.
Wednesday, April 23, 2014
What I Wish You Knew...IEP Edition
Sam and I have attended countless IEPs. An IEP for those of you blessed not to know is an Individual Educational Program and Isaac (as well as any other child with a qualifying disability under federal IDEA law) is entitled to one. Without getting into the vat of Alphabet Soup that is Special Needs legislation, I want to pay some homage to the students, parents and professionals who are during these final months of school preparing themselves for this at least confusing and potentially hellish process.
So yeah, disclaimer, I have been to several nasty IEPs. I have actually been to a few good ones. Over the course of 13 years (think about that for just a second), I have made an in depth personal study of the IEP process as it relates to my son, my family and my sanity. There are characteristics of good IEPs and of rotten ones. As the season begins, I offer this blog....What I Wish You Knew...IEP Edition.
I wish you knew that...
1. I stood in front of my closet for two hours choosing this outfit. I have to bring my A game and image goes right along with that. I debated painstakingly about the exact right combination of sweet, smart and kick butt. I got ready as a knight prepares to face a dragon. I hope the encounter will end in the dragon and I sharing tea over a picnic spread but I am prepared with my game face if the situation becomes one of curt negotiation.
2. I do not share the same cognitive, language and social limitations as my son. I am intelligent and professional. Actually, I have studied education specifically for more than a decade, am a certified educator, have a graduate degree and am pursuing another. I need for you to understand that I am not merely a placeholder in this room but am a viable and essential component of this team which will help shape my son's future. Please speak to me like a grown up. Respect my ideas and contributions.
3. I am personally involved. You may genuinely care about my son. I pray you do. That care will make you do your best for him and keep pushing you and him to greater achievement. My stake in this is so much greater than yours will ever be. I labored with this child. I taught him to use a spoon. I have been with him through unspeakable behaviors and hard times. I am right now responsible for him 24/7. He will be with you for a while but then and always he is mine. For his sake, I push you to explore all options, to consider all sides, to change your plans in ways that will better serve him even if it makes you work harder. I may disagree with you. That's ok. My differing opinion comes from the fuller knowledge of my child and our family dynamic. I may not think your plan is viable. That does not make me a poor parent.
4. It still hurts. I need to professionally hear the facts of my son's educational journey with you but the realities of the testing data still hurt. I will try not to show it. I will discuss it in depth professionally but when I am alone I will grieve. What do you do with that knowledge? I don't want your sympathy and to placate is to malign so please don't. Please don't tell me you understand. You don't. Please don't compare your situation to mine. Even if you are a special needs parent, you aren't the parent of my special needs child. You do not understand. You can't. You can watch your words. Words are so important and set the tone for the meeting and for our relationship. Refer to my child by his name and never by his diagnosis. PLEASE PLEASE PLEASE do NOT use the word "autistic". His name is Isaac. Give me the facts and relate them to his current levels of functioning and his proposed goals. Do it professionally and rely on me to fully process them later.
5. I am so frustrated with this whole system. A child's education cannot possibly be worked out via a succession of politically correct, legally stipulated, high stakes board meetings. It's ridiculous. I see in your eyes that you know that too. I don't have horns and you don't either. I know that. I'm a teacher too. Education is about relationship. We team. We work together for the benefit of this child. We cannot be afraid of each other. We cannot fight with each other. We cannot play games. The clock is ticking. My child started so very far behind that we have no time to waste. I need to be involved throughout. Communicate with me. Allow me to visit and help and observe and participate in the same way that a parent of a typical child is encouraged to. I swear I am not looking for a reason to sue you. Trust me when I say that raising my child takes enough of my time and energy.
I understand and am grateful for the legal stipulations that bind the special needs educational practice. My kid is tough and years ago would not have been allowed an education. I know the reason for the law. Honestly, the law exists to protect where there is no relationship.
This blog post is tough and potentially confrontational. It isn't meant to be. I struggled to share this. My words can be taken in a poor light. Still, this is a place where I can offer my voice and maybe make some change. This is a chance to share with you openly and honestly a different perspective. If you have never seen an IEP from the land beyond the looking glass, you cannot know my perspective nor appreciate my apprehension. It's about perspective. It's about relationship. It's about my child. It's about Isaac.
This is a good place to stop for now. There is more to write. It's exhausting to be this honest with you sweet friends...but it is necessary. I share my world to open your eyes so that you may understand the perspective of the parent at the table. I share so that you may communicate wisely and with discretion. I share so that you may begin to build relationships which will strengthen the education of the child which is at the center of it all.
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